Lisboa recebe 1200 especialistas para congresso mundial de esclerodermia

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especialistas de todo mundo em Esclerodermia(Esclerose Sistémica uma doença reumática que afeta uma em cada5000000>000>000000>000>000>/b000>000000>000>000>/font> mil pessoas.000> 000>000> A esclerodermia 000> uma doença crónica que se carateriza sobretudo pelo endurecimento ou espessamento da pele a que se chama fibrose mas que também pode envolver outrosórgãos como os pulmões o intestino os rins e o coraão Em Portugal estima-se que afeta mais de três mil pessoas.000> 000>000> Depois de Florença(000000>000>000000>000>000>/b000>000000>000>000>/font000>00 Madrid(000000>000>000000>000>000>/b000>000000>000>000>/font000>02 e Roma(000000>000>000000>000>000>/b000>000000>000>000>/font000>04 Lisboa recebe este mês médicos e investigadores de diferentesáreas que vão reunir-se em torno de um programa dedicadoà esclerodermia que inclui a partilha dosúltimos desenvolvimentos clínicos relevantes centrados na melhoria da qualidade de vida dos doentes que sofrem desta doença a nível mundial.000> 000> O Congresso Mundial de Esclerodermia apresenta também um programa dirigido a pacientes abertoà populaão em geral que pretende abordar vários temas sobre a realidade da doença com diferentes sessões dedicadasàs suas manifestaões clínicas e ao seu impacto sociolaboral e psicoemocional– numa linguagem mais acessível.000> 000>“A esclerodermia 000> considerada uma das piores doenças reumáticas em termos de resposta ao tratamento Apesar dos novos fármacos em estudo não existe uma terapia globalmente eficaz em todas as manifestaões” esclarece Ana Cordeiro da direão da Sociedade Portuguesa de Reumatologia.000> 000> Neste sentido a especialista alerta para a importância do diagnóstico precoce da doença:“uma vez detetada a doença 000> muito importante reforçar a educaão do doente de forma a que este recorra atempadamente ao seu reumatologista quando surgem novas queixas j que esta patologia causa diminuião da longevidade e diminui drasticamente a qualidade de vida.000> 000> 000> 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